When people find out we are parents to a child with disabilities we get one of a few different responses:
“I don’t know how you do it”
“You are so strong”
“That must be hard”
Although I typically respond with:
“Emma is much stronger then I am.”
But what i really want to say is. I didn’t expect a life filled with doctors appointments, therapies, medical bills, or copping techniques.
I can see all the strength I’ve gained as her mom but many nights I still cry after days that seem endless.
Some days “hard” doesn’t even come close to how it feels.
I wasn’t given a choice. Instead, We were given diagnoses, medications, and therapies.
Emma means the world to Tyler and I and there is nothing we won’t do to give her the best life for her.
There isn’t a day we won’t advocate and fight for her. But there are plenty of tears, plenty of sleepless nights, plenty of worry, and a whole lot of stress.
No matter how easy someone makes life with disabilities appear. No matter how much they smile. No matter what they show you life is more than hard. Days are more then long. And nights are more than restless.
We would never change our children and we love them with every ounce of our being.
But its hard.
My greatest hope is that all these hard days make life easier for Emma. All my worry makes her carefree. All her therapies help shape her future. All my sleepless nights give her rest and relaxation.
Because as parents thats what we do for the children we love so much